Improving the quality of post-diagnostic support for people newly diagnosed with dementia in Scotland

We achieve this by:

  1. developing and testing a Quality Improvement Framework to support the delivery of high quality post-diagnostic support (PDS). Developing an accompanying guide for people with dementia and their carers. For more information and to see our film on the Quality Improvement Framework visit the Quality Improvement Framework for Dementia Post-Diagnostic Support in Scotland webpage.
  2. developing and facilitating a network for PDS practitioners across Scotland to share practice and innovation in order to reduce variation and improve quality of care and support.
  3. developing and facilitating a forum for PDS leads across Scotland to share practice and link with national partners in order to support and inform dementia strategy implementation.
  4. testing the relocation of diagnosis and PDS services within primary care, through initial testing within three GP cluster areas in Scotland. For more information vist the Diagnosis and Post-Diagnostic Support in Primary Care webpage

Key Information Summary for people with dementia 

NHS Lothian has developed useful guidance and resources to help create a Future Care Plan and Key Information Summary for people with dementia.

The information in a Future Care Plan is used to create a Key Information Summary. A Key Information Summary is an electronic Future Care Plan which can be accessed by health and social care services to inform decisions about care and treatment. You can find out more and access the guidance and resources on the NHS Lothian Future Care Planning web page.

Understanding models of dementia diagnosis

As part of Healthcare Improvement Scotland’s dementia improvement work and in association with the PDS Leads network, we conducted a survey to identify different clinic models in place across Scotland to diagnose dementia. The summary is intended to support improvement work on dementia diagnosis. 

Improving and supporting carers of people with dementia 

We are pleased to share two impact stories, produced by and in collaboration with the Unpaid Carers Programme at Healthcare Improvement Scotland, on involving and supporting carers of people accessing dementia services.

To ensure everyone can benefit regardless of their characteristics or where they access care, we completed an equality impact assessment. This highlights key equality issues that were considered by our project team, and any actions we took in relation to them.

To find out more contact the team at